One of the great myths of medicine is that "end-of-life" patient autonomy
issues are new, somehow related to advances in diagnosis, treatment,
technology and the law. Not so. "Patient autonomy" is an ancient principle
of medicine in Western civilization. So are the legal and moral
complexities that patient autonomy creates for physicians.
And if we now believe that a competent adult patient is (or should be) free
to refuse even life-saving medical treatment – "Patient's Body, Patient's
Right" – it's still a complicated affair.
In addition to the "First, do no harm" precept, Hippocrates more than 2,500
years ago counseled: "... For where there is love of humankind there is also
love of the Art. For some patients, though conscious that their condition
is perilous, recover their health simply through their contentment with the
goodness of the physician."
In other words: Hang in there, Doc.
Of course, not everybody shares such faith. In Moliere's 17th century play
"Love Is the Best Doctor," Lysetta asks, "What will you do, sir, with four
physicians? Is not one enough to kill any person?" This "Unholy Four" was
caricatured from the disagreeing and disagreeable doctors who attended the
fatal illness of Cardinal Mazarin in 1661. According to legend, when one of
them was later stuck in Parisian traffic, a cart driver shouted: "Let the
doctor go ahead. He's the one who did us the service to get rid of the
Cardinal."
However, between these two polar beliefs – the doctor's very presence works
miracles AND the more medical attention you get, the more doomed you are –
lie all the complexities we've created for ourselves. People are living
longer and better lives.
Medicine can do so much more today. But more complicated treatments are
ever more expensive, and death is still our necessary end. And where
there's death, you can expect to find the lawyers and courts nearby.
Relatively simple treatments, such as pain relief for the terminally ill or
those in severe chronic pain, are often passed over in favor of more
complicated – and more risky – treatments, such as surgery.
Speaking of miracles, in 1990 and again in 1993 and 1996, the Los Angeles
County Medical Association and LA Bar Association agreed on "Guidelines for
Withdrawing/Withholding Life-Sustaining Treatment."
Section B, "Rights of Patients," states:
"An adult person capable of giving informed consent has the right to make
his or her own decisions regarding medical care after having been fully
informed about the benefits, risks and consequences of treatment
alternatives, even when such decisions might result in shortening the
individual's life."
Section C, "Surrogate Decision Makers for Incompetent Patients," clearly
notes:
"If the surrogate does not know of any treatment preferences stated by the
patient while competent, the surrogate is to act in the patient's best
interest by analyzing the comparative benefits and burdens of continued
treatment, as well as the patient's attitudes and beliefs, and such factors
as relief of suffering, the preservation or restoration of function, and
the quality and the extent of life sustained."
Further, Section E, "General Treatment Principles," states:
"Medication should be given as indicated for pain or discomfort even if it
may tend to hasten death. ..." (See here our last column, "
Significantly, under section H, "Role of The Courts, the code notes:
"Most cases involving the foregoing of life sustaining treatment can be,
should be, and are, resolved without the involvement of the courts."
Finally, the California Court of Appeals has ruled, "If the right of the
patient to self-determination as to his own medical treatment is to have
any meaning at all, it must be paramount to the interests of the patient's
hospitals and doctors."
We've quoted from these "Guidelines" at length because we believe that, in
the aggregate, they provide a reasonable approach to end-of-life decisions.
Especially the one about keeping the courts and, by implication, the DEA out of it.
Michael Arnold Glueck, M.D., writes on medical-legal and related policy
issues. Robert J. Cihak, M.D., is a former president of the Association of American Physicians and Surgeons (AAPS).
Contact Drs. Glueck and Cihak by e-mail.
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