Tags: colorado | boy | stone | skin | condition | rare

Colorado Boy's 'Stone' Skin Condition Is Literally Entombing Him

Image: Colorado Boy's 'Stone' Skin Condition Is Literally Entombing Him
(YouCaring)

By    |   Tuesday, 23 Feb 2016 02:01 PM

A Colorado boy is turning to "stone" due to an extremely rare skin condition, his relatives say.

"It started as small little patch and it spread all over," Natalie Rogers, mother of 10-year-old Jaiden, told ABC News. "They’re trying to slow it down as much as it can, until we can find something."

Rogers said that about three years ago she and her husband, Tim, discovered something going on just under the surface of Jaiden's skin.

"It’s like little marbles and some of it is flat and hard," she said.

Those patches began to spread, and Jaiden was soon diagnosed with stiff-skin syndrome, which can slowly cover the body in rock-like lesions.

"Literally, it’s turning him to stone; he’ll be entombed in himself if we can’t find something," Rogers said.

According to the Daily Mail, his condition is so rare that Jaiden's is only the 41st case to ever be reported.

Doctors have been using chemotherapy medications to slow the growth of the lesions, but Jaiden's father reported that his touching his son's leg is like "tapping on a counter top." They’ve also tried steroids, immune-suppressant drugs, and light therapy, but nothing has worked well enough so far.

Because of the condition of his legs, as well as the side effects from the medications — which make him woozy — Jaiden is currently using a wheelchair to get around. He also uses an oxygen tank, and is unable to go to school.

"He’s very outgoing," said Natalie, but "he’s on so many meds, most of the time he’s tired and strung out."

The Rogers have gone public with Jaiden's illness in an effort to bring attention to the rare condition, which has only been reported in cases drawn up by researchers. They are also trying to raise funds for his treatment via a YouCaring website.

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A Colorado boy is turning to "stone" due to an extremely rare skin condition, his relatives say.
colorado, boy, stone, skin, condition, rare
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2016-01-23
Tuesday, 23 Feb 2016 02:01 PM
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