Tags: Coronavirus | medical records | registry | datavant | fda | who

Companies Scramble to Create a Coronavirus Patient Registry

medical records
(Dreamstime)

By    |   Thursday, 09 April 2020 12:04 PM

Healthcare and software companies across the country want to pool medical records to learn more about who the dreaded coronavirus disease strikes and which treatments are most effective. The hope is that an aggregate of pertinent data will help the federal government monitor the spread of the coronavirus and administer appropriate therapies.

San Francisco-based Datavant Inc., which specializes in compiling medical data, is the key player and began spearheading the movement in late March. Datavant’s proposed registry would be free for government and academic researchers and would include every patient who has been tested for COVID-19, according to The Wall Street Journal. Other companies who may become involved in the registry include Allscripts Healthcare Solutions Inc., Change Healthcare Inc., and insurance provider Anthem Inc.

The Food and Drug Administration has been receptive to the proposed registry.

“The FDA recognizes the potential for many different real-world data sources to complement traditional clinical studies and speed the process of evaluating the impact of potential COVID-19 therapies,” an FDA spokesman said, according to the Journal. “To that end, the agency is advancing relationships with partners in the public and private sectors to rapidly collect and analyze information in areas such as illness patterns and treatment outcomes.”

The registry would not include patient names or any other identifying details, says the Journal, but would include detailed information about their complete medical records.

The reason this information is so essential is that we don’t know the correct course of action to take to end global lockdown. According to NewScientist, epidemiologists have a saying, “If you’ve seen one pandemic, you’ve seen one pandemic.”

Experts say we are in an entirely novel situation, not least because coronavirus is so different from the flu, and that this pandemic will be understood only through the collection of more data and information. Even the World Health Organization advises that the only way to stop the rapid spread of this virus is to “test, test, test.”

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Healthcare and software companies across the country want to pool medical records to learn more about who the dreaded coronavirus disease strikes and which treatments are most effective. The hope is that an aggregate of pertinent data will help the federal government...
medical records, registry, datavant, fda, who
327
2020-04-09
Thursday, 09 April 2020 12:04 PM
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